November 24, 2010

Raising Awareness - CureJM

A close friend of ours, Morgan, was recently diagnosed with a rare auto-immune disease called Juvenile Myositis.  There are very few kids diagnosed with Myositis each year; therefore, pharmaceutical companies do not put a lot of R&D into JM.  It’s very unfortunate, but that hasn’t stopped Morgan and her family from dedicating themselves to raising awareness and money for CureJM.cureJM

morgan

TBO.com: Little girl's mission - A Pasco county girl is on a mission to inform others on the disease that has isolated her from having an active life.

Take a minute to learn more about Morgan and how JM has changed her life: http://www2.tbo.com/video/2010/nov/23/little-girls-mission-01128/video-news/

Morgan was already successful in winning the Pepsi Refresh Grant this August for $250,000 that went to CureJM.  Morgan’s Mom, Amy, and the rest of the Wesley Chapel Tri Team have been training to run a full marathon to also raise money for a cure. Click here for more info and to donate.

Are you local to Tampa Bay??  Please come out to Sweet Tomatoes on N. Dale Mabry on Monday, November 29th from 5-8pm for a CureJM Fundraiser.  Have dinner there and twenty percent of the sales generated that evening will go right to CureJM.  Email me if you want more info!

Please help out by spreading the word and helping them raise money for CureJM in Morgan's Honor!

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    My Story
    Welcome to my life…

    Over the past three years it has been flipped upside down. I am 31 years old, and married to my hubby of three years, Josh. We have 4 beautiful angel babies, who are fondly known as our “Green Beans”. The first of my quads, Heidi, held on as long as she could and was born on January 31, 2009 after pPROMing at 17 weeks. A few weeks later, I pPROM’d with my sweet Lily. Lily, Paige, and Rylan were all born at 22 weeks on February 23, 2009. Just after being released from the hospital empty handed, I returned with a high fever and infection. Two of the nights I spent in the hospital that week, I honestly thought I was going to die. It was the sickest and most hopeless I’ve ever been. I’m pretty sure my diagnosis was a broken heart.

    Our journey to becoming parents has had its share of happiness and heartbreaks. I got through every day by staying close to Josh, friends and family, blogging, and relying on God that my future will be bright. All the love and support I’ve gotten has greatly helped me manage……I am alive and well, and want to be my absolute best as a result of this.

    On May 1st 2011, we welcomed our sweet baby girl, Taylor, into this world. She is our miracle baby and brings so much joy and happiness in our lives. She is such a gift from God.

    I have come out of all of this with a better appreciation of life. I hope to make the best of this situation by helping others who will experience a similar loss.





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